At Alopecia UK we are keen to meet the needs of all affected by alopecia.  We have identified that our services do not quite meet the needs of teenagers with alopecia and we’d like to fix this. To do so we have decided to set up a brand new project involving a board of young people who will help steer Alopecia UK in providing further services for teenagers.  This will ensure we begin to establish a process that enables the youth voice to come through and be heard at the strategic level.  It is important to us that young people living with alopecia have the opportunity to guide what happens at Alopecia UK, sharing their views on how things can be improved and getting involved with the creation of new projects.

Are you a young person with alopecia?

If you are keen to help improve things for yourself and other young people with alopecia then the Alopecia UK Youth Voice Board can support and offer you the platform to create a change.

Who are we looking for?

We are looking for a diverse group of eight to twelve young people aged 13 – 18 with some form of alopecia, representing different backgrounds and life experiences across England, Scotland, Wales and Northern Ireland to create an Alopecia UK Youth Voice Board.

Alopecia UK appreciates and values diversity and inclusivity. We want to make sure that the Alopecia UK Youth Voice Board is inclusive and recognises the needs of young people with alopecia across different communities. We actively encourage young people from underrepresented groups to apply for this role including LGBTQ+, ethnic minority groups, carers, those living in low-income households, and those managing health conditions and/or disabilities. Places will be assigned to ensure all the lived experiences of young people with alopecia across the UK are represented.

What will the Alopecia UK Youth Voice Board do?

Essentially, that’s up to you! We want to make sure that young people’s voices are heard within the charity so that they can inform, create and improve things for other young people with alopecia. Exactly how we do that will come down to working as a team to figure out what young people with alopecia need and how we can make that happen.

To be involved you need to:

  • Live in the UK
  • Be aged between 13-18
  • Have access to a laptop, tablet or smartphone with access to the internet,
  • Attend and engage in our monthly online meetings, using platforms such as Zoom.
  • Attend our twice yearly face to face meetings*
  • Be committed to representing young people with alopecia.
  • Care about improving services, resources, and information for young people with alopecia.
  • Have a passion to ensure a real difference for other young people with alopecia.
  • Want a chance to have your say about how Alopecia UK meets our aims of support, awareness and research in relation to young people.
  • Sign up to a two-year term (with year one being our pilot year).

*Due to COVID-19 the face-to-face meetings may potentially be virtual, however this will be monitored in line with the national guidance.


What we can offer:

Alopecia UK Youth Voice Board offers fun, engaging, and interactive activities and projects designed to give you the opportunity to:

  • Have your voice heard at all levels and share your ideas.
  • Design and create projects and resources for young people with alopecia.
  • Develop skills to problem solve, grow in confidence, and implement change.
  • Meet other young people with alopecia and work in partnership with your peers.
  • Enhance your CV.

Those on the Youth Voice Board will receive on-going support from Alopecia UK and all reasonable expenses covered (e.g. travel, food etc.)

How to get involved:

Step 1: Complete this form 
Please ensure this is done by the young person directly and not by a parent/carer.
Deadline: Monday 14th June at 9am.

Step 2: We want to know why you want to join the Alopecia UK Youth Voice Board, why you think you will be good at it and one resource, project, or event you would like to see happen for young people with alopecia. Tell us either through:

  • A video up to 3 minutes.
  • A 1 – 2-minute voice recording.
  • A one-page typed word document.

Send your entries into [email protected]
If your file size is too large, please use WeTransfer.
(If unsure as how to use We Transfer please feel free to email and we can help!)

Step 3: Wait to hear back from us! All those who apply will hear back from us after 14th June as to whether they have secured a place.

Please note: Applications close on Monday 14th June at 9am.