Alopecia UK is a small national charity working to improve the lives of those affected by alopecia through aims of support, awareness, research and fundraising.  Despite being a small charity we are still the largest alopecia charity in the UK with big ambitions to develop and grow further.  Alopecia UK was founded in 2004 and registered with the Charity Commission of England & Wales in September 2005. Registration with the Scottish Charity Regulator took place in February 2014.

Our Mission

To improve the lives of those affected by alopecia.

Aims & Workstreams

Support:

Our aim - we will provide impartial information, advice and support to help people feel less isolated.

We do this through:

  • Providing a website packed full of useful information and advice
  • Facilitating online peer support platforms, including Facebook Groups as well as a HealthUnlocked Forum
  • Facilitating a network of over twenty volunteer-led peer support groups across the UK for children, teenagers and adults
  • Organising a ‘Big Weekend’ national conference event packed full of talks, workshops, demonstrations, sponsors, exhibitors and socials
  • Individual support is provided to those who contact the charity via email, telephone and social media; queries range from questions about wig provision, lack of understanding from GPs or family members, how to help children with alopecia and questions about diagnosis, treatments and prognosis

Awareness:

Our aim - we will raise awareness to the general public and healthcare professionals about alopecia and its psychological impact.

We do this through:

  • Promoting awareness to medical professionals
    • We attend conferences, both with stalls and as speakers, engaging with medical professionals to highlight the patient experience of alopecia with an aim to increase understanding and empathy
    • We are currently developing an education module with the Royal College of General Practitioners, specifically for GPs, in order to enable more GPs to improve upon their knowledge and understanding of alopecia
  • Promoting awareness to the general public
    • We support media requests about alopecia (including TV, newspaper, magazine and radio opportunities) by finding participants to take part or one of the charity team taking part directly
    • We facilitate active and engaging social media platforms, including Facebook, Twitter and Instagram
    • We develop and sell merchandise through our online shop
    • We develop, sell and distribute children’s story books to increase understanding of alopecia at the grass roots level
    • We work with our ambassadors to raise the profile of both the charity and also alopecia
    • We facilitate large scale national events whereby large groups of people attend to raise awareness of alopecia in public spaces e.g. our annual trip to Alton Towers

 

Research:

Our aim - we will provide hope and confidence to people with alopecia by funding research into its causes, with the aim of finding treatments, and ultimately, a cure.

We do this through:

  • Having a Research Committee. 2018 will see the co-ordination of the first Alopecia UK Research Committee made up of scientists, researchers, clinicians, pharma representatives, psychologists, and patient representatives to provide a Research Strategy for the charity to work to in 2019 and beyond
  • Funding small scale research projects. Up to now these have been ad hoc however 2018 will see an annual grant application scheme rolled out
  • Supporting researchers to find participants for their research studies
  • Supporting an alopecia biobank through funding sample collection

 

Fundraising:

Aim - we will create a sustainable funding stream to enable the continued growth of Alopecia UK.  

We do this through:

  • Supporting fundraisers
  • Encouraging donors
  • Developing mutually beneficial schemes for the corporate sector to encourage their support
  • In 2018 we will begin to invest more resource in funding applications to grant schemes, trusts and funds in order to diversify where our funds come from in order that we can expand our growth

Our Values

  • To be open, honest and act with integrity
  • To work productively in partnership with others
  • To be passionate and motivated to make a change
  • To appreciate the skills, expertise and commitment of our Staff, Trustees and Volunteers, many of whom have personal experience of alopecia

To see our latest annual report please click here.