Amy Johnson

About Amy:

Amy is Alopecia UK's Communications Manager. Amy began volunteering with Alopecia UK in 2012 and became a member of the staff team in 2014, holding the post of Operations Manager until her return to Communications Manager in November 2023. She lives in West Yorkshire with her Labrador, Buddy. She enjoys long dog walks, swimming and travel. Amy lost her hair in 2010. You can read more about her alopecia story here. 

Amy's background:

Before working for Alopecia UK, for over a decade Amy worked in financial services. She worked in pensions administration before progressing to management at a firm of independent trustees, during which time she gained strong administration, communication and management skills. 

Amy at Alopecia UK:

Amy is responsible for Alopecia UK's website and social media, which help to support and inform the alopecia community, as well as educate the wider public. As a staff member working in Alopecia UK's small West Yorkshire office, Amy also helps to ensure the smooth day to day running of the charity. 

Amy also represents Alopecia UK at conferences to raise awareness of the psychological impact of alopecia to medical professionals. She links in with the British Association of Dermatologists and the Dermatology Council of England. Amy has been involved in many different projects in her time at Alopecia UK but counts the creation of our children's story booklets, the publication of Alopecia UK's report into wig provision in England and the development of the alopecia e-learning module for GPs as the key achievements from her time at the charity. 

Why Alopecia UK?

"Being in touch with others with alopecia and gaining that valuable peer support made living with alopecia much easier for me. It was through Alopecia UK that I first met others with alopecia and this changed everything for me. I went from feeling isolated, insecure and angry, to feeling happy and confident again. In 2012, when I found out how small a charity Alopecia UK was, and that it was entirely volunteer-led, I was keen to give back to the charity that had helped me so much. I felt strongly then, as I do now, that people with alopecia deserve to have their condition understood by medical professionals and their needs met. I am proud to be a part of Alopecia UK and its work to improve the lives of those with alopecia". 

Amy's favourite inspirational quote:

You may not control all the events that happen to you, but you can decide not to be reduced by them. (Maya Angelou)

Amy in the Media:

'Seven Things I Wish I'd Known When I Lost My Hair'- Huff Post UK, July 2017

'12 Things People Living With Alopecia Want You To Know'- BuzzFeed, April 2016

'Adjusting to Life After Losing Your Hair'- Independent Online, September 2014

'I Shouldn't Be Approaching My 30th Birthday With No Hair' - Yorkshire Post, November 2012

Amy's Blogs:

A Shadow of My Former Self (March 2024)

The Importance of Being Regular (June 2023)

Navigating the Sea of Hope and Disappointment (May 2023)

Laughter is the Best Medicine! (February 2023)

We're All in This Together (August 2022)

Responding to the Events from the 2022 Oscars (March 2022)

The Gift of Regular Giving (November 2021)

Jen and Amy Reflect on Film and TV Representation of Baldness (November 2020)

Ten Reflections of Ten Years Living With Alopecia (July 2020)

A Valentine's Date with a Scalpel (February 2020)

The Greatest Love of All (October 2019)

The Daunting World of Dating (April 2019)

Hair - Do You Really Want to Hurt Me? (January 2019)

Two Lines on a Face (June 2018)

Reviewed by Alopecia UK on 25/03/2024