Institution: University of Cardiff

Lead researcher: Dr Rachael Pattinson

Project title: Global Research on the Impact of Dermatological Diseases (GRIDD)

Type of alopecia: any (any skin condition)

Closing date: 31 December 2023

The Global Research on the Impact of Dermatological Diseases (GRIDD) project is the first global patient impact project in the history of dermatology. It aims to collect global data on the impact of dermatological diseases directly from patients. Alopecia UK has previously supported earlier phases of this study, in which the researchers interviewed people with skin conditions to develop a tool to measure the true impact of skin conditions. In the current phase, they are trying to gather data on the impact of skin diseases from 10,000 people with all different skin conditions, from all countries.

The GRIDD data will support local, national, and international advocacy work for more research, better treatments and healthcare policies, and, ultimately, will improve the lives of dermatology patients. For the first time, dermatology patients around the world and from all disease types will contribute to a dataset that measures the true impact of living with their diseases. The dermatology community,
including patients, patient organizations, health care professionals, researchers and industry will be empowered with verifiable, patient-derived data and supportive advocacy tools, training, and resources to collectively take action for a better future for patients.

The Patient-Reported Impact of Dermatological Diseases (PRIDD) measure was developed because no existing measurement tool is capable of comprehensively capturing the full impact of dermatological conditions on patients’ lives. PRIDD was developed in partnership with 2,490 patients representing 90 conditions from 61 countries and according to best practices in new measure development.
The GRIDD Study will be live from June 5 through December 31. The primary goal of the study is to capture responses from 10,000 dermatology patients from as many regions and dermatological conditions as possible. The Study will be comprised of an online survey available on a dedicated mobile-friendly website and will take approximately 10-20 minutes for patients to complete. The survey is
available in 17 languages.

The study is open to adults aged >18 years, who have any skin condition (including any type of alopecia).

The participant information sheet contains further detailed information about the study https://globalskin.org/images/GRIDD_Study_Launch/PIS_Docs/ENG_PIS_v1.pdf. If you have any questions about the study, please contact Dr Rachael Pattinson: [email protected]

To participate in this research please follow this link: https://globalskin.org/GRIDDStudy