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  • Non-Affiliated Support Groups

Non-Affiliated Support Groups

On this page we signpost to non-affiliated support groups. This means that Alopecia UK does not have any association or connection these groups.  Alopecia UK is not responsible in any way for the running of non-affiliated groups but is happy to advertise them as we are keen to signpost individuals to other available support options. Please note these contact details are for those wanting support, not businesses wishing to promote their services. 

Please contact the group organisers directly for further details on their meetings.

Location: Contact Name: Contact Details:
Newcastle Lyndsey Brack 

Email:
[email protected] 

Telephone:
07470282951   

I am Lyndsey I have had alopecia now over 10 years and last year decided to set up a support group in Newcastle in the hospital that I had my treatment. I feel talking to others with the same condition, can really help with this journey. The group runs once a month in the RVI Hospital on a Friday afternoon. A very friendly group of both men and ladies of all ages.

Newton Aycliffe Catriona Grime

Email:
[email protected]

Facebook:
@alopeciasupportcodurham

Alopecia Support Co. Durham is a support group for those aged 16 years and over, who reside in Co. Durham and who have been diagnosed with Alopecia. The group will offer support to individuals coming to terms with a new or existing diagnosis of alopecia and the effect that it has on their lives.

Northampton Helen Toone

Email:
[email protected]

The Northamptonshire Support Group is very informal. We meet every two months in a pub to offer each other support, swap ideas and offer advice if requested. We have experience of various forms of hair loss and we know how important and life-changing talking to others who really understand can be. 

Telford Caroline O'Rourke 

Email: 
[email protected]

A local support group for the Telford area, where members can meet others experiencing alopecia. 

Online

Lorna Jones

Email:
[email protected]

*This support group is just for those with Central Centrifugal Cicatricial Alopecia, known as CCCA*

For those women who have this condition, a new CCCA support group is being formed in the UK in partnership with the Cicatricial Alopecia Research Foundation (CARF), and is the first international group to exist outside of the US.

Support groups are a great opportunity to connect within the scarring alopecia community allowing patients to express themselves in the safety of a group that understands and where they can share ideas and tips with each other. It will be a unique and inspirational opportunity to network with other patients and to understand more about the condition.

The support group will meet 4 times a year beginning in January 2021.

If you would like to list your non-affiliated alopecia support group here please get in touch to [email protected] to request for your group to be added.

Alternatively if you would like to find out more about setting up an Alopecia UK support group in your area please see here.

Published: 6th July, 2018

Updated: 16th November, 2020

Author: Naomi Hall

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