Last month, we asked our community to complete a survey which asked for feedback about our Support aim. We invited feedback about which of our support workstreams are most important, how people would prefer to receive support and provided the opportunity to give opinions on our current resources. 

Here we are pleased to summarise some of the results from that survey: 

  • 46% of respondents ranked the written information on our website as the most important area of support to them
  • In-person volunteer-led support groups were voted the second most important area of support
  • Respondents were more likely to access peer support than professional support
  • The top resources requested on the website related to mental health
  • Respondents prefer text and pictures to other formats. Video content was a close second. 
  • Respondents would like to see regional social meet-ups. 

It is encouraging to see that the support activities people want to see Alopecia UK involved in, are predominantly things we already offer. This encourages us that we are on the right path and motivates us to strengthen those areas. We will focus on making our website the best it can be. For many, their experience of Alopecia UK begins and ends with the website. We will commit to making our website the best source of information, advice and support for people with alopecia. 

We will also continue our work to strengthen our network of peer support groups across the UK. We look forward to announcing new groups soon - watch for details in our newsletter, socials and check the current groups here

We will of course continue to look for ways that we can continue to make improvements across our support activities to ensure that people with alopecia have the tools that allow them to live confidently with alopecia. 

Looking at our impact, we have pulled together this infographic which includes some impact statistics that we are really proud of. We hope we can continue to have a positive impact in the lives of those with alopecia for years to come. 

A huge thank you to everyone who completed the survey. We appreciate your feedback.