Help us understand the social and economic impact of alopecia areata

Share your experiences to help people understand the impact of alopecia areata – dispel the myth that ‘its only hair’

We need you if:

- You have a diagnosis of alopecia areata (including alopecia totalis and alopecia universalis)

- Are aged 16+

- You are living in the UK

At Alopecia UK, we know all too well the significant psychological impact hair loss can have on those affected. We also know it can have a big impact financially. Many people tell us about the costs of paying for products and services related to hair loss which can create further challenges.

We need you to help us explore the true costs – both the economic costs and the social costs of having alopecia. We are not aware of any published research to date which has examined the financial impact of alopecia on individuals, so this is a real opportunity to contribute to new research and share your experiences.

Alopecia UK, in collaboration with the Centre for Appearance Research at the University of the West of England, are pleased to have received funding from Pfizer to carry out this independent research. If you have a diagnosis of alopecia areata (including alopecia totalis and alopecia universalis) from a health care professional, are aged 16 and above, and live in the UK, we are inviting you to help us by completing an online survey.

The survey will take around 30 minutes to complete. We know this is a time commitment but hopefully you can make a cuppa and work through our survey. We ask some questions about your finances, such as incomings and outgoings. Any information provided is completely confidential. Whilst answering questions about spending can feel a bit intrusive, we really do need this information. It helps us tell the story of how much people affected by alopecia spend on products and services for hair loss as a percentage of income. We will be using the survey findings to help us to shout about the socioeconomic impact of alopecia to help raise awareness, improve support resources and highlight the need for greater research and treatment options for those affected.

We need 700 people to complete our survey. It is probably the largest study we have done so far and we need you to make sure it is a success.

To take part head to the survey page here