Support & Advice Alopecia UK Support Groups London Meeting dates: Date Time Location Sunday 20th January 2019 1:00 - 4:00pm (Upstairs Function Room) Lucas Arms, 245A Gray's Inn Road, London, WC1X 8QY Sunday 24th February 2019 1:00 - 4:00pm (Upstairs Function Room) Lucas Arms, 245A Gray's Inn Road, London, WC1X 8QY Saturday 27th April 2019 Midday Meet at Putney Bridge Sunday 19th May 2019 1:00 - 4:00pm Lucas Arms, 245A Gray's Inn Road, London, WC1X 8QY Saturday 22nd June 2019 TBC Spying Room (upstairs), The Morpeth Arms, 58 Millbank, SW1P 4RW Extra meeting information: The regular meetings are now held in the Lucas Arms (previously held at the Malborough arms) where we have a private space within the pub. Refreshments are available to buy. London support group meetings are typically informal gatherings - a chance to mix and talk to others about your experiences. Below you can find some extra information from Amy about individual meetings: Sunday 20th January 2019: Q&A with Dermatologist Dr David Fenton. 1-4pm at the usual venue Upstairs Function Room, Lucas Arms, 245A Grays Inn Road, London (Walking distance from Kings Cross, St Pancras) Sunday 24th February 2019: Bring and Share Support Group Event 1-4pm at Upstairs Function Room, Lucas Arms, 245A Grays Inn Road, London The Bring and Share session (which being completely honest, is an idea I am stealing from another AUK Support Group lead as it sounded amazing!) will ask members to bring along anything they have found useful in managing their alopecia if they are happy to do so. For example, this may be a particular wig, headscarf, a book or even an action you do every day to help you within your journey. Saturday 27th April 2019: Walk from Putney to Barnes along the Thames Path (finishing in a pub or café for food and refreshments). Meet on the Putney Bridge (South Side of the river) at Midday Sunday 19th May 2019: Support Group Meeting at the Lucas Arms 1-4. Coping with Alopecia Workshop focussing on Self Image (TBC) Saturday 22nd June 2019: Pub Quiz Event! As your quiz master, I can only tell you how happy I am to be able to host our 4th pub quiz event for the London Support Group! Always a well attended event, and lots of fun! An Eventbrite ticket registration will be set up soon so I can keep an eye on numbers (as we need at least 20 people to attend to get the private room in the pub free of charge). I will do this soon. Address: Spying Room (upstairs), The Morpeth Arms, 58 Millbank, SW1P 4RW Who can attend: Those with all types of alopecia age 14 and over (male and female) Friends/partners of those with all types of alopecia (accompanying someone with alopecia) Parents of children with all types of alopecia Please note that those age 14-17 must be accompanied by someone age 18 or over. This group is not suitable for those under 14. If you have a child under 14 and are looking for support please contact the separate London Children Support Group. Contact details: Amy HarmsworthEmail: [email protected]Amy does not have her telephone number advertised but is happy to provide a listening ear via telephone call at a time arranged via email. She is also happy to receive support questions from those in her local area and will answer to the best of her ability based on her own knowledge and experiences. Please be aware that any questions Amy is unable to answer will be sent on to staff at Alopecia UK. Amy's link with alopecia: Amy was first diagnosed with Alopecia Areata when she was 10 years old. Amy found growing up with Alopecia challenging at times but learnt very quickly that it was not going to stop her from doing any of the things she wanted to do (which was good since she just wanted to surf and horseride!). Growing up she learnt a lot about personal strength and always thinking about others, which she now appreciates and thanks her alopecia journey for. She has had some experiences of re-growth but right now has Alopecia Universalis, losing all hair, including eyebrows and eyelashes. She attended the support group for the first time two years ago, and was amazed by the strength and support she drew, and also offered, within the meetings. Her confidence with alopecia has never been so high, and she thanks all the people she has met since she started attending. She was both proud and honoured when she was asked to lead the group.From Amy: "It is most important for me to say that EVERYONE is welcome to join this group - all types of alopecia, different stages and types of hair loss, men, women, and partners/parents of people with alopecia. In addition, how you use the group is also entirely up to you - no-one is forced to speak if you would rather listen. Some people attend every session, others I might see once a year, and others only attend once to get what they need. All versions of support is absolutely fine, make this group what you want it to be for you! Support groups are now held in the Lucas Arms - a pub about a 5 mins walk from Kings Cross St. Pancreas which serves a number of train lines, as well as the Victoria, Circle, Hammersmith and Fulham, Metropolitan, Northern and Piccadilly Tube Lines. A number of bus routes also serve this area. We are very fortunate that we are offered the private back room for a discounted price (which in Central London is an absolute win) so anything we can offer back in terms of food and drinks ordered is always appreciated. I try and offer a variety of events for the support group from support meetings to fun activities such as yoga, walks and pub quiz nights. I welcome any suggestions for feedback to make this group as great as it can be.", Need Advice or Support Outside of the Group Meetings?The main role of support group leads is to facilitate, and answer questions about, the group meetings. Some may offer additional support and you can see what is on offer from Amy in her contact details. Please note that all of our support group leads are volunteers and do this in their spare time. As such please allow up to a week for replies to emails. The majority of group leads are not trained health professionals and will be helping from the standpoint of being someone who is affected by alopecia themselves and wanting to reach out and help others.You can always contact Alopecia UK head office direct during office hours should you have any queries that need a more urgent response.Suggestions, Comments, Compliments, Complaints?If you have any 'Suggestions, Comments, Compliments or Complaints' about any of the Support Groups listed on the Alopecia UK website then you can let us know by clicking here. Feedback is always appreciated. The information will be used by Alopecia UK to to help us understand what works and what doesn't in order that we can support and advise group leads more effectively and develop the Alopecia UK support group network.