Institution: Alopecia UK and University of the West of England (funded by Pfizer)

Location: UK wide

Closing date: August 2022

Alopecia UK is pleased to announce that we have received funding to study the socioeconomic impact of alopecia areata (including alopecia totalis and alopecia universalis). The project will be led by Alopecia UK in collaboration with Fabio Zucchelli and his colleagues at the Centre for Appearance Research, Dr Matthew Harries (Consultant Dermatologist) and Professor Andrew Messenger (Consultant Dermatologist).

At Alopecia UK, we often hear from people that hair loss can have a significant financial cost to individuals. Costs we often hear about are associated with buying wigs, paying for permanent make-up such as microblading, buying specific products that may facilitate hair growth, and paying to see hair specialists privately, but there are other costs to hair loss. Some people tell us they struggle to find work because they feel anxious about their hair loss, others have said they don’t feel confident about going for promotion resulting in loss of opportunity and the financial incentives that go with that. In a nutshell, there are a lot of costs associated with hair loss – and this is what we mean when we talk about the ‘socioeconomic burden of alopecia areata’.

We have wanted to examine the costs associated with hair loss for some time, to help us to understand more about the impact alopecia has on everyday life. This can then help us advocate on behalf of people affected by alopecia to demonstrate the true impact it can have with the aim of dispelling the myth that ‘it’s just hair’.

The survey will take around 30 minutes to complete. We know this is a time commitment but hopefully you can make a cuppa and work through the survey. We ask some questions about your finances, such as incomings and outgoings. Any information provided is completely confidential. Whilst answering questions about spending can feel a bit intrusive, we really do need this information. It helps us tell the story of how much people affected by alopecia spend on products and services for hair loss as a percentage of income.

Who can take part?

- You have received a diagnosis of alopecia areata (including alopecia totalis and alopecia universalis)

- You are aged 16+

- You are living in the UK

We will be using the survey findings to help us to shout about the socioeconomic impact of alopecia to help raise awareness, improve support resources and highlight the need for greater research and treatment options for those affected.

To take part, visit the survey link here