Support & Advice Find a support group London Children Meeting dates: Date: Time: Location: Sunday 1st July 2018 12pm Trip to London Science Museum Saturday 29th September 2018 1pm-3pm Central London (Nearest Tube Station: Farringdon) - please contact Amy for address details Extra meeting information: Sunday 1st July - Trip to London's Science Museum from 12pm - Parents, children and volunteers will meet outside the Science Museum in South Kensington at 12pm on the 1st July, before heading in to explore this amazing building. Parents will be responsible for their own children. Activites once we are in the museum will depend very much on the amount of people coming - we may even split the kids into groups depending on numbers/ages/genders etc. If you are planning on coming to this event, please do let me know, including the detail of the children coming (siblings and friends are welcome and their details will also be helpful!) Please include name, age, and if possible, the type of alopecia they have Saturday 29th September - Farringdon Venue - Fairly unstructured support group for children with alopecia. We usually have some fun ice breakers, play games and have arts and craft tables. Activities are usually aimed for children between 5-12 years. However, we are also willing to do other activities in a separate room for teens, depending on need. Please do let me know if your family is planning on joining this event - including ages and details of the children you will be bringing. Important note: We regret to inform you that there is no disabled access in this building and the room we will be using is up some stairs. We apologise to anyone this affects. If this does affect you and you would like to come along to a future meet please get in touch and let us know so we can work on finding a different venue for future. Otherwise we will keep using this venue as we are able to use it for free.Finding the venueNearest tube station: Farringdon (on Circle, Hammersmith & City and Metropolitan line. Only one stop from Kings Cross).Parking: There is an NCP just on the other side of Smithfield Market. Who can attend: Children and young people with all types of alopecia up to the age of eighteen (male and female) Parents of children with all types of alopecia Siblings of those with all types of alopecia (accompanying someone with alopecia) Please note that those age under 18 must be accompanied by someone age 18 or over. Contact details: Amy HarmsworthEmail: [email protected] Amy's links with alopecia: Amy was first diagnosed with Alopecia Areata when she was 10 years old. Amy found growing up with Alopecia challenging at times but learnt very quickly that it was not going to stop her from doing any of the things she wanted to do (which was good since she just wanted to surf and horseride!). Growing up she learnt a lot about personal strength and always thinking about others, which she now appreciates and thanks her alopecia journey for. She has had some experiences of re-growth but right now has Alopecia Universalis, losing all hair, including eyebrows and eyelashes. She attended the support group for the first time two years ago, and was amazed by the strength and support she drew, and also offered, within the meetings. Her confidence with alopecia has never been so high, and she thanks all the people she has met since she started attending. She was both proud and honoured when she was asked to lead the group. Need Advice or Support Outside of the Group Meetings?The main role of support group leads is to facilitate, and answer questions about, the group meetings. Some may offer additional support and you can see what is on offer from Amy in her contact details. Please note that all of our support group leads are volunteers and do this in their spare time. As such please allow up to a week for replies to emails. The majority of group leads are not trained health professionals and will be helping from the standpoint of being someone who is affected by alopecia themselves and wanting to reach out and help others.You can always contact Alopecia UK head office direct during office hours should you have any queries that need a more urgent response.Suggestions, Comments, Compliments, Complaints?If you have any 'Suggestions, Comments, Compliments or Complaints' about any of the Support Groups listed on the Alopecia UK website then you can let us know by clicking here. Feedback is always appreciated. The information will be used by Alopecia UK to to help us understand what works and what doesn't in order that we can support and advise group leads more effectively and develop the Alopecia UK support group network.