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  <title>Alopecia UK Online Forum</title>
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  <pubDate>Sun, 20 May 2012 13:01:34 +0000</pubDate>
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   <title>Alopecia Areata, Universalis and Totalis : Pregnancy related hair loss?</title>
   <link>http://www.alopeciaonline.org.uk/forum/forum_posts.asp?TID=13444&amp;PID=339016&amp;title=pregnancy-related-hair-loss#339016</link>
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    <![CDATA[<strong>Author:</strong> <a href="http://www.alopeciaonline.org.uk/forum/member_profile.asp?PF=5909">2littleones</a><br /><strong>Subject:</strong> Pregnancy related hair loss?<br /><strong>Posted:</strong> 20/May/2012 at 12:26pm<br /><br />Hello everyone! I signed up to alopecia uk a few weeks ago but only working up the courage to put a post up now (think this makes the alopecia saga more real).<br /><br />My story in short. When i was 7 months pregnant (last october) noticed a bald spot on back of my head. Didn't think this was anything to be too concerned about, however i then noticed that while i was brushing my hair more than usual seemed to be coming out. Fast forward to February, i have a happy, healthy 4 week old little girl but im sitting in a wig shop as ive lost about 80 percent of the hair on my head. <br /><br />Some days it still doesnt feel real. My doctor is lovely but it was obvious that she has never dealt with anyone with my problem to this extent. She basically just said thats awful, there is nothing we can do and here are some anti depressants (didnt take them) because you've just lost your hair and you've had a baby. I only admitted the full extent of my problem to my husband and family when the baby was born. I had long, thick hair and it all started to come out from back of my head so i was able to hide it for quite some time. They were devastated which i think in turn made me feel worse plus pregnancy hormones. <br /><br />I cut the rest of my hair off and thankfully my hair is growing back although it will obviously take some time. I searched the internet but havent come across anyone with a similar experience in pregnancy, if my alopecia is even to do with my pregnancy. I think the 'not knowing' is the worst part but from reading on the forum everyone has their own battles and there are some remarkable people out there who have learned to cope. I have only told close family and friends. I bought myself a real hair wig and it is the exact shade, lenght and style of my own hair. It does feel like im living a lie though, but at the same time i dont want people looking at me differently.<br /><br />If you take the time to read this then thank you. Even if i dont get a reply its good to get this out of my system. I dont talk about my hair loss now apart from with my husband. i think everyone is scared of upsetting me and in turn im afraid of upsetting them. This forum has gave me a dose of reality and perspective but it has also made me realise that alot of people are going through the same thing.&nbsp;&nbsp;&nbsp;&nbsp;]]>
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   <pubDate>Sun, 20 May 2012 12:26:26 +0000</pubDate>
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   <title>Alopecia Areata, Universalis and Totalis : Photographer looking for people with alop</title>
   <link>http://www.alopeciaonline.org.uk/forum/forum_posts.asp?TID=11689&amp;PID=339015&amp;title=photographer-looking-for-people-with-alop#339015</link>
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    <![CDATA[<strong>Author:</strong> <a href="http://www.alopeciaonline.org.uk/forum/member_profile.asp?PF=2565">ClaireM</a><br /><strong>Subject:</strong> Photographer looking for people with alop<br /><strong>Posted:</strong> 20/May/2012 at 12:16pm<br /><br />Daniel,<div><br></div><div>These are beautiful images, and it looks like the exhibition went superbly well. Congratulations on your hard work, and your initiative (and Agata's) to image beauty in what is seen in our society as unexpected places.</div><div><br></div><div>Well done,</div><div><br></div><div>Claire x</div>]]>
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   <pubDate>Sun, 20 May 2012 12:16:55 +0000</pubDate>
   <guid isPermaLink="true">http://www.alopeciaonline.org.uk/forum/forum_posts.asp?TID=11689&amp;PID=339015&amp;title=photographer-looking-for-people-with-alop#339015</guid>
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   <title>Coping &amp; Appearance Tips : Hair Dream</title>
   <link>http://www.alopeciaonline.org.uk/forum/forum_posts.asp?TID=13435&amp;PID=339014&amp;title=hair-dream#339014</link>
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    <![CDATA[<strong>Author:</strong> <a href="http://www.alopeciaonline.org.uk/forum/member_profile.asp?PF=5299">SueE</a><br /><strong>Subject:</strong> Hair Dream<br /><strong>Posted:</strong> 20/May/2012 at 11:45am<br /><br />I had the opposite last night - my hair seems to be growing back (patchy and sparse, but growing nevertheless) and I dreamt that it all fell out again!&nbsp; Strangely I felt quite relieved in the dream, which I think is because I was quite happy being bald but find the "will it/won't it grow back" bit really stressful.&nbsp; Even if my hair does eventually grow back the same as before, I think I'll always have the nagging worry that it won't last.&nbsp; ]]>
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   <pubDate>Sun, 20 May 2012 11:45:37 +0000</pubDate>
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   <title>Alopecia Areata, Universalis and Totalis : Immunosuppressants - Azathioprine and Ciclosporin</title>
   <link>http://www.alopeciaonline.org.uk/forum/forum_posts.asp?TID=13442&amp;PID=339013&amp;title=immunosuppressants-azathioprine-and-ciclosporin#339013</link>
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    <![CDATA[<strong>Author:</strong> <a href="http://www.alopeciaonline.org.uk/forum/member_profile.asp?PF=1255">BeeJay</a><br /><strong>Subject:</strong> Immunosuppressants - Azathioprine and Ciclosporin<br /><strong>Posted:</strong> 20/May/2012 at 8:55am<br /><br />Hi there<DIV>&nbsp;</DIV><DIV>If only it could be so simply as take this, and we're fixed.&nbsp;&nbsp;</DIV><DIV>I've heard contradictory things about our immune system - on the one side, that its gone into overdrive and is attacking thing it shouldn't... and on the other that its become sluggish and not working properly and equally not sending out the right information.&nbsp; &nbsp;Either view can be almost irrelevant because we still have hairloss, and we still don't have THE magic fix.</DIV><DIV>&nbsp;</DIV><DIV>For some people participating in the treatments, of whatever kind and whatever result is a good thing, it makes them feel they are doing something for themselves, it helps in the managing of being an alopecian.&nbsp; So the proactive isn't&nbsp;only for hair growth.&nbsp;Whilst for others the opposite is also true.&nbsp; Trying things on a may be outcome is not helpful at all.&nbsp; And they manage far better by not&nbsp;pursuing treatments.&nbsp; &nbsp;It all comes down to who you are and what's best for you, in your choice think also of your emotional well being, alongside the strong desire for hair.&nbsp;</DIV><DIV>&nbsp;</DIV>]]>
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   <pubDate>Sun, 20 May 2012 08:55:58 +0000</pubDate>
   <guid isPermaLink="true">http://www.alopeciaonline.org.uk/forum/forum_posts.asp?TID=13442&amp;PID=339013&amp;title=immunosuppressants-azathioprine-and-ciclosporin#339013</guid>
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   <title>Alopecia Areata, Universalis and Totalis : Immunosuppressants - Azathioprine and Ciclosporin</title>
   <link>http://www.alopeciaonline.org.uk/forum/forum_posts.asp?TID=13442&amp;PID=339012&amp;title=immunosuppressants-azathioprine-and-ciclosporin#339012</link>
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    <![CDATA[<strong>Author:</strong> <a href="http://www.alopeciaonline.org.uk/forum/member_profile.asp?PF=968">Jaye-London</a><br /><strong>Subject:</strong> Immunosuppressants - Azathioprine and Ciclosporin<br /><strong>Posted:</strong> 20/May/2012 at 8:19am<br /><br />Hi - firstly, I'm sorry you are in the Alopecia Club, but glad you found your way to AUK.<DIV>&nbsp;</DIV><DIV>I've had AA for over 20 years.&nbsp; Initially small patches which eventually started joining up.&nbsp; These days I'm AU, but the progression was extremely slow over the years.&nbsp; During my earliest AA phase, I was the sort of person to try everything and anything to kick-start my hair to regrow... steriod injections/oral, PUVA, DCP, minoxidil, homeopathy, chinese medicine, accupunture, Vitamin B12 injections to name but a few.&nbsp; </DIV><DIV>&nbsp;</DIV><DIV>There were only two things that my private dermatologist offered me that I didn't pursue: one was anti-rejection drugs (I don't know what the names were) which were, at the time, being used for HIV/Aids patients.&nbsp; The risks of damaging liver and kidneys was too high a price for me.&nbsp; I decided I'd rather be healthy with patchy hair than take the chance of damaging my organs.&nbsp; The other option I dismissed was pregnancy - the basis of this thought was that perhaps the hormonal shake-up might distract my immune system sufficiently to allow my hair to regrow.&nbsp; My dermatologist wasn't suggesting he'd get me pregnant <img src="http://www.alopecia&#111;nline.org.uk/forum/smileys/smiley36.gif" height="17" width="17" border="0" alt="LOL" title="LOL" /><img src="http://www.alopecia&#111;nline.org.uk/forum/smileys/smiley9.gif" height="17" width="17" border="0" alt="Embarrassed" title="Embarrassed" />&nbsp;and, being single and in my early 20s,&nbsp;I wasn't ready to have children.&nbsp; I remember asking him "What do I do with baby at the end of it?" <img src="http://www.alopecia&#111;nline.org.uk/forum/smileys/smiley36.gif" height="17" width="17" border="0" alt="LOL" title="LOL" />&nbsp; Since then, I've learned that, actually, pregancy can sometimes be the trigger the onset&nbsp;of alopecia anyway.</DIV><DIV>&nbsp;</DIV><DIV>The bottom line is that only <EM>you</EM> can decide what treatments are worth <EM>you</EM> trying.&nbsp; I can only urge you to do your research thoroughly, so that you can truly weigh up the pros and cons for you personally would be of each option - be it the financial investment, the time commitment or the health risks.&nbsp; Good luck in your decisions.&nbsp; As AA sufferers/survivors we always seem to have many decisions to make as we travel our alopecia journeys.</DIV><DIV>&nbsp;</DIV><DIV>Jaye</DIV>]]>
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   <pubDate>Sun, 20 May 2012 08:19:21 +0000</pubDate>
   <guid isPermaLink="true">http://www.alopeciaonline.org.uk/forum/forum_posts.asp?TID=13442&amp;PID=339012&amp;title=immunosuppressants-azathioprine-and-ciclosporin#339012</guid>
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   <title>Coping &amp; Appearance Tips : Hair Dream</title>
   <link>http://www.alopeciaonline.org.uk/forum/forum_posts.asp?TID=13435&amp;PID=339010&amp;title=hair-dream#339010</link>
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    <![CDATA[<strong>Author:</strong> <a href="http://www.alopeciaonline.org.uk/forum/member_profile.asp?PF=2806">deirdre</a><br /><strong>Subject:</strong> Hair Dream<br /><strong>Posted:</strong> 19/May/2012 at 9:24pm<br /><br />Hey Beejay! I have the hair dreams every now and again. Few and far between nowadays! They always surprise me when I wake up... wondering "Well, where did that come out of?"]]>
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   <pubDate>Sat, 19 May 2012 21:24:52 +0000</pubDate>
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   <title>Androgenetic Alopecia : What&#039;s the best way to overcome hair loss problem?</title>
   <link>http://www.alopeciaonline.org.uk/forum/forum_posts.asp?TID=13368&amp;PID=339009&amp;title=whats-the-best-way-to-overcome-hair-loss-problem#339009</link>
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    <![CDATA[<strong>Author:</strong> <a href="http://www.alopeciaonline.org.uk/forum/member_profile.asp?PF=2806">deirdre</a><br /><strong>Subject:</strong> What&#039;s the best way to overcome hair loss problem?<br /><strong>Posted:</strong> 19/May/2012 at 9:21pm<br /><br />Hi Nitasha, did you doctor give you any ideas about what form of hair loss you are experiencing? The treatment differs for each kind. Personally I have opted out of any treatments as the cost would not be justified as the results can't be sure. Alopecia has much more of an emotional impact on our lives than physical, support and understanding are vital to our well being.]]>
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   <pubDate>Sat, 19 May 2012 21:21:40 +0000</pubDate>
   <guid isPermaLink="true">http://www.alopeciaonline.org.uk/forum/forum_posts.asp?TID=13368&amp;PID=339009&amp;title=whats-the-best-way-to-overcome-hair-loss-problem#339009</guid>
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   <title>Coping &amp; Appearance Tips : Hair Dream</title>
   <link>http://www.alopeciaonline.org.uk/forum/forum_posts.asp?TID=13435&amp;PID=339008&amp;title=hair-dream#339008</link>
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    <![CDATA[<strong>Author:</strong> <a href="http://www.alopeciaonline.org.uk/forum/member_profile.asp?PF=5171">nightingale</a><br /><strong>Subject:</strong> Hair Dream<br /><strong>Posted:</strong> 19/May/2012 at 8:06pm<br /><br />Funny that you mentioned hair dreams - I realised I haven't had any for many months! I suspect it's because I'm coping better. I used to have them frequently. First they were dreams in which I had a normal hair, then they transformed into something where I had weird hair but still better looking than my real hair and now they're gone. For me, there seems an inverse correlation between the hair dreams and the amount I talk about alopecia with other people or do other proactive stuff. It's like as if my subconsciousness was rubbing it in all those years I tried to hide it...<br>]]>
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   <pubDate>Sat, 19 May 2012 20:06:57 +0000</pubDate>
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   <title>Alopecia Areata, Universalis and Totalis : Immunosuppressants - Azathioprine and Ciclosporin</title>
   <link>http://www.alopeciaonline.org.uk/forum/forum_posts.asp?TID=13442&amp;PID=339007&amp;title=immunosuppressants-azathioprine-and-ciclosporin#339007</link>
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    <![CDATA[<strong>Author:</strong> <a href="http://www.alopeciaonline.org.uk/forum/member_profile.asp?PF=5458">alopecia_in_2011</a><br /><strong>Subject:</strong> Immunosuppressants - Azathioprine and Ciclosporin<br /><strong>Posted:</strong> 19/May/2012 at 6:35pm<br /><br />Hi there, I've been AU since around January. When I last went to the dermatologist I was offered Azathioprine or Ciclosporin as an option to consider. I'm going back next month for another check up and to let the doctors know if I want to go with it.<br><br>My initial reaction was no, due to the possibility of severe side effects but I would be interested to hear what others thought, or if any of you have tried it. I would never want to take it long term but wouldn't want to rule out the possibility of taking a low dose on a short term basis in the future.<br><br>Do any of you have experience of using these drugs?<br>]]>
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   <pubDate>Sat, 19 May 2012 18:35:57 +0000</pubDate>
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   <title>New Members : The power of the Hat.</title>
   <link>http://www.alopeciaonline.org.uk/forum/forum_posts.asp?TID=13441&amp;PID=339006&amp;title=the-power-of-the-hat#339006</link>
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    <![CDATA[<strong>Author:</strong> <a href="http://www.alopeciaonline.org.uk/forum/member_profile.asp?PF=5946">Shilts</a><br /><strong>Subject:</strong> The power of the Hat.<br /><strong>Posted:</strong> 19/May/2012 at 5:42pm<br /><br />Many thanks Sue, <br />I am sure the forum will help me.<br />PS. <br />If it's any consolation, I look really daft in some of my hats  <img src="http://www.alopeciaonline.org.uk/forum/smileys/smiley2.gif" border="0" align="middle" /> ]]>
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   <pubDate>Sat, 19 May 2012 17:42:15 +0000</pubDate>
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